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Once thought of as an exclusively pediatric illness, significant advances in CF medicine now help patients live well into adulthood.
We are proud to note that more than half of our center's patients are adults. Our oldest patients are celebrating birthdays in their mid 60s! Our patients are a remarkable group of men and women who are making their individual marks on the world by fulfilling their personal and professional goals. Our most successful patients are those who make their health & wellness routines a key part of their daily lives while still realizing their dreams! Our roles as healthcare providers involve helping patients and families touched by CF to make informed choices about their care in order to live the longest and fullest lives possible.
Living with cystic fibrosis can present many challenges to patients and their families. Our dedicated expert staff is on-hand to assist patients with all medical and socio-emotional needs that may arise at each phase of life.
Resources:
There are a growing number of resources for patients and families with CF. This list represents just a tiny sampling of the many organizations and websites available for additional CF information and support. Additional links and information can be found by contacting any of these organizations:
- Cystic Fibrosis Foundation (CFF)
6931 Arlington Road Bethesda, Maryland 20814 Phone: (301) 951-4422 / Toll free: (800) FIGHT CF (344-4823) Fax: (301) 951-6378 Website:www.cff.org E-mail: info@cff.org
- Cystic Fibrosis Research Inc. (CFRI)
Bayside Business Plaza 2672 Bayshore Parkway, Suite 520 Mountain View, CA 94043 Phone: 650-404-9975/ Fax: 650-404-9981 Website: www.cfri.org
- The United States Adults Cystic Fibrosis Association, (USACFA)
*(publisher of CF Roundtable Newsletter for Adults with CF) P.O. Box 1618, Gresham OR 97030-0519 Phone/Fax:503-669-3561 Website: www.cfroundtable.com Email: cfroundtable@usacfa.org
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