Topic Overview
What are congenital heart defects?
Congenital
heart defects are problems with how a baby's heart forms. 'Congenital' means
that the heart problem develops before the baby is born or at birth.
Most
congenital heart defects affect how blood flows
through the
heart
or through the blood vessels near the heart.
Some defects may cause blood to flow in a pattern that is not normal. Others
can completely or partially block blood flow.
There are many
different types of congenital heart defects. They can be fairly simple, such as
a hole between the chambers of the heart or a heart valve that has not formed
right. Others are more serious and complex, such as a missing heart valve or
heart chamber.
Some defects are discovered in the fetus (baby)
while a woman is pregnant. Others are not found until birth. Still others may
not be discovered until your child gets older or even until he or she becomes
an adult.
No matter when a heart defect is discovered, having a
child with a heart problem is very stressful. Dealing with the fear and
uncertainty may seem overwhelming, especially when you have a fragile newborn.
It may help you to learn as much as you can about your child's treatment and to
talk to your doctor and other parents who have a child with similar
problems.
What causes the defects?
No one knows exactly what
causes most congenital heart defects. Genes passed down from a parent are a
possible cause. Viral infections also may play a role. For example, if a woman
gets German measles (rubella) while she is pregnant, it may cause problems with
how her baby's heart develops. Women who have
diabetes have a greater chance of having a child with
a congenital heart defect.
Congenital heart defects are more
common in babies who are born with genetic conditions such as
Down syndrome.
Taking some prescription
or other medicines during pregnancy may cause congenital heart defects. Women
who use illegal "street" drugs or who drink alcohol during pregnancy have a
higher risk of having a baby with a congenital heart defect.
What are the symptoms?
Symptoms of congenital
heart defects will depend on what problem your baby has. Babies with congenital
heart defects may have one or more of these symptoms:
- Tiring quickly
- Having
difficulty breathing
- Developing puffiness
or swelling
- Sweating easily
- Having fewer wet diapers
than normal
- Not gaining weight as they should
- Developing a bluish tint to the skin, lips, and fingernails that
becomes worse while eating or crying
- Having fainting or near-fainting spells, especially related to
physical activity
In some cases, your child's congenital heart defect may
be so mild that symptoms will not appear until the child is a teenager or young
adult.
How are congenital heart defects diagnosed?
In
most cases, congenital heart defects are found at birth or during a baby's
first few months.
You may find that your baby has trouble eating
or is not gaining weight. Or your doctor may hear abnormal sounds or murmurs in
your baby's heart during a routine checkup. The first sign may be a bluish tint
to the baby's skin.
After a doctor suspects a heart defect, your
baby will probably need several tests, such as blood tests, an
echocardiogram, and possibly a heart catheterization.
The doctor may use the echocardiogram to check blood flow through your baby's
heart and to look at the valves, thickness, and shape of the heart. A heart
catheterization measures blood pressure in the heart and heart arteries and can
show how well the heart is pumping.
Having your child go through
this testing can be very scary. Do not be afraid to ask as many questions as
you need to ask to feel comfortable. Talk to your doctor, the nurses, and the
people who are doing the testing.
How are they treated?
Some defects get better on
their own and may not need treatment. Your baby's or child's treatment will
depend on the type of defect.
Medicines may be used to help the
heart work better. Medicines may also treat symptoms until the defect is
repaired.
Some defects can be fixed by using a catheter, which
does not require opening up the chest. A doctor threads a thin tube called a
catheter through a blood vessel, typically one in the groin. The doctor threads
the catheter through to the heart, where he or she uses it to close holes or
open narrowed blood vessels or valves.
If a baby has a large or
complex defect, the baby may need one or more open-heart surgeries. The surgery
may be done right away, done over several steps, or delayed until the baby is
stronger. Sometimes surgery is delayed if the baby is premature or until the
baby is strong enough to handle the surgery. In some cases, the child may need
different types of surgery over time as he or she grows.
In rare
cases, a heart defect may be so serious that a heart transplant is
needed.
Frequently Asked Questions
Learning about congenital heart defects: | |
Being diagnosed: | |
Getting treatment: | |
Ongoing concerns: | |
Living with congenital heart defects: | |
Cause
The exact cause of most
congenital heart defects is not known. But doctors do
know that certain things increase the risk that a baby will have a heart
defect.
- If the baby's parents or brother or sister has
a heart defect, the baby may have inherited a
gene from the family that causes a heart
problem.
- If the baby's mother drinks alcohol, takes certain
prescription or
over-the-counter medicines, or uses illegal street
drugs during pregnancy, this could cause the baby to have a heart
defect.
- If the baby is born prematurely or has a genetic condition
such as
Down syndrome, he or she has a higher risk of having a
heart defect.
- If the baby's mother has diabetes or is exposed to
German measles (rubella) during her pregnancy, the baby has a greater chance of
developing a heart defect.
Symptoms
Congenital heart defects cause a wide range of symptoms. Your baby may have only mild
symptoms and tire easily, for example. He or she may have life-threatening
symptoms, such as
severe difficulty breathing. Or your baby may not have
any symptoms that you notice at birth but may develop them later as he or she
grows.
Common symptoms of a congenital heart defect
include:
- Difficulty breathing.
This often is noticed when your baby is active, such as during feeding or
crying.
- Poor weight gain. When most of a
baby's energy is spent pumping blood to the body, little is left for eating and
growing. Your baby may tire when eating and may take longer than expected to
finish feeding.
- Sudden weight gain or
puffiness and swelling of the skin, seen most often around the eyes and in the
hands and feet and may be most noticeable when your baby first wakes up. The
weight gain or puffiness can be caused by fluid retention that is related to
poor blood circulation.
- Sweating, especially
on the head. You may notice that your baby has damp hair and cool, moist skin.
- Fatigue and fussiness. Your baby may be too
tired to play and may sleep most of the time.
- Fewer wet diapers than expected. After the first week, most newborns wet at
least 6 diapers in a 24-hour period. You may also notice that your baby's urine
is dark and strong-smelling.
Blood flow problems caused by heart defects can mean that
your baby gets less oxygen. This happens mostly in children who have
cyanotic heart defects ("blue babies"). Cyanotic heart
defects are abnormal openings between the heart chambers that allow oxygen-poor
blood from the right side of the heart to mix with oxygen-rich blood from the
left side of the heart. Defects that do not cause cyanosis (acyanotic heart
defects) do not normally interfere with the amount of oxygen or blood that
reaches the body's tissues.
If a baby has trouble getting oxygen,
the baby may have symptoms such as:
- A bluish tint (cyanosis) to
the skin, lips, and nail beds. This becomes worse when your baby cries or eats.
- Slower-than-expected growth and development (with more severe
congenital heart defects). Your baby may weigh less, be shorter, and take
longer than expected to learn skills such as standing and walking.
Symptoms usually go away after the defect is corrected. A
congenital heart defect that is repaired at the right time is less likely to
permanently affect your child's growth and development.
What Happens
Congenital heart defects happen when the heart does
not form normally as the baby (fetus) grows in the uterus. Heart defects may
cause problems with
blood flow through the heart
after a baby is born. The problems can affect the
baby's blood and oxygen supply.
If the problems are not treated,
the baby could develop
heart failure or
other complications. Abnormally shaped heart valves,
in particular, can lead to complications such as
endocarditis or narrowed or leaky heart valves.
Newborns with serious life-threatening defects usually require immediate
surgery to repair the damage. Some children may die even with early treatment.
Medicines are sometimes used while waiting to see whether a mild defect heals
on its own or until a child is strong enough to have
heart catheterization or
surgery.
Congenital heart defects may not
be found until the teenage years or later. Some defects get better on their own
and do not require treatment.
Although many children and adults
with corrected heart defects lead normal lives, heart defects can be related to
or cause long-term risks that may include:
- Developmental delays or disabilities or
behavior problems.1
- Certain physical
traits, such as smaller-than-average adult height and weight,
clubbing, or cyanosis (bluish tint to the skin from
low blood-oxygen levels). These can present challenges to a person's
self-esteem and confidence.
- A shorter life span than average, if
the defect is severe or if complications, such as
endocarditis, develop.
If you are an adult with a congenital heart defect, you may
have to make decisions about:
- Pregnancy and birth control. Some
congential heart defects are passed down through families. For this reason, you
may want to seek
genetic counseling to find out your risk for having a
child with a heart defect. Pregnancy may increase certain health risks for
women who have heart defects, requiring close monitoring from a health
professional. If you are trying to prevent pregnancy, you will need to select a
form of birth control that poses the lowest risk to your health.
- Type of employment. Get an expert opinion from a cardiologist about your
physical capabilities and risk for future heart problems as you explore career
options. With this information, you can make realistic choices and get
appropriate training. Some people may assume that all heart defects are serious
enough to keep someone from normal activities or work. But very few adults with
congenital heart defects are considered disabled.
- Health insurance. Be aware that people with congenital heart defects often have
difficulties when trying to change health insurance or when applying for new
coverage. Research your options carefully before changing policies and find out
whether you may qualify for state or federal assistance
programs.
- Use of
antibiotics. Most people with congenital heart defects
have a lifelong
increased risk for endocarditis. They need to take
excellent care of their teeth and any types of infections. They may need to
take antibiotics before having certain
dental and surgical procedures.
- Exercise. You need to talk to your doctor before
getting involved in sports or exercising. You may need an exercise
electrocardiogram (cardiac stress test), sometimes
done along with a type of
echocardiogram, to measure how your heart responds to
exercise.
What Increases Your Risk
In most cases, the cause of a
congenital heart defect is not known. But certain
things increase your baby's chances of developing a heart defect.
- Family history: A child's risk for
having a congenital heart defect increases if a brother, sister, or parent has
one.
- Other genetic conditions: For example,
Down syndrome has been linked to congenital heart
defects.1
- Premature birth: Babies born too
early have a higher chance of having a congenital heart
defect.
- Chronic conditions: Babies born to women with
diabetes or
phenylketonuria have a higher chance of having a
congenital heart defect.
Women who plan to become pregnant and women who are
pregnant can lower their risk of having a baby with a congenital heart defect
by taking steps to have a
healthy pregnancy.
When To Call a Doctor
Call 911 or other emergency services immediately if your child has
severe difficulty breathing, faints, or has
seizures.
Call your health professional immediately if your child
with a
congenital heart defect has:
- Symptoms of
heart failure or cyanosis-the bluish tint that affects
skin, lips, and nails because of lack of oxygen-that become significantly worse
within a short time period.
- Symptoms of
endocarditis, such as a fever that will not go
away.
Talk to your doctor if your child with a congenital heart
defect has:
- Moderate difficulty
breathing.
- Fewer wet diapers and has swelling (puffy eyes, hands,
and feet).
- A poor appetite and is not eating well or has a
rapid heartbeat or rapid breathing while
eating.
- Less energy or seems to be sleeping more than
usual.
- Sudden weight gain or is not gaining weight.
Watchful Waiting
Watchful waiting, which is a wait-and-see
approach, is not appropriate if:
- You think your child has a congenital heart
defect.
- Your child has a congenital heart defect and the symptoms
change.
Who To See
The following health professionals can evaluate
symptoms of a congenital heart defect:
To prepare for your appointment, see the topic Making the Most of Your Appointment.
Exams and Tests
Testing for
congenital heart defects can be done while a woman is
pregnant or after a baby's birth.
A fetal
echocardiogram, which can be done as early as 16 weeks
of pregnancy, is the best test before a baby's birth. The test uses sound waves
to take pictures of the fetal heart. The fetal echocardiogram may be done if:
- You have a
family history of heart defects.
- You have
been exposed to certain chemicals during your pregnancy.
- You have
taken medicines during your pregnancy that may increase the risk that your baby
(fetus) will develop heart defects.
- A
fetal ultrasound shows a problem with the heart. This
routine test is often done during pregnancy. Fetal ultrasound can show a
problem with the heart's structure, but it may not show some kinds of heart
defects.
Many congenital heart defects are found within the first
month after a baby is born. To diagnose a heart defect, a doctor will ask
questions about the baby's symptoms, appetite, and
other habits and give the baby a
physical exam. An
echocardiogram and possibly a
heart catheterization (angiogram) may be
needed.
More tests may be needed, depending on the symptoms and
type of defect. These may include:
- Chest X-ray,
to check the size and blood vessels of the heart.
- Electrocardiogram (ECG, EKG), to check for irregular
heart rhythms (arrhythmias) that may be related to a congenital heart defect.
- Stress test (exercise electrocardiogram), which may be
done around the time the child starts school to find out how much exercise your
child can do.
- Blood tests, to check for
anemia,
polycythemia, or levels of certain chemicals in the
blood.
- Oximetry, to see whether oxygen-poor
blood is being pumped to the body. This test would be done if your baby has
severe difficulty breathing or has a bluish tint
(cyanosis) to the skin, lips, and nail beds. The amount of oxygen in the blood
can also be measured by an
arterial blood gas (ABG) or a
transcutaneous monitor (in infants).
- MRI of the heart and major blood vessels, to view
abnormal heart structures and/or blood vessels. If this test is done, your
child will probably be given medicine to make him or her relax and sleep during
the test.
Early Detection
In families with a history of congenital heart
defects, genetic testing may be done.
A baby may be checked for
congenital heart defects if the mother:
Treatment Overview
Your child's treatment for a
congenital heart defect will be based on the type of
problem he or she has. Your child's age, size, and general health also are
important.
Treatment helps most children to live fairly normal
lives. Your child may need:
- Medicines to help with symptoms. Some medicines
can control a heartbeat that is not regular. Others make the heart stronger
until a defect can be fixed. Your child may need some medicines after
surgery.
- Heart catheterization to find out details about the
heart defect or sometimes to repair the defect. With heart catheterization, a
doctor threads a thin, flexible tube called a catheter through a blood
vessel-typically in the groin-and into the heart. This lets the doctor see how
blood is flowing through the heart and heart arteries.
- Surgery to
repair the structural defect. If a young baby (for example, newborn to 3 months
old) has a life-threatening defect, surgery may be needed right away. For some
defects, the best time for surgery is before the child is 2 years old. For
other defects, the best time may be between the ages of 2 and 4. In some cases,
surgery may be done when a child is older. Surgery may be delayed if the defect
is likely to heal on its own.
Initial treatment
If your child has a mild
heart defect, a doctor may want to see if the defect
gets better on its own. Your child may need some medicines during this time to
help his or her heart work better. For example, a medicine called a
prostaglandin inhibitor can be given to a premature
baby to help close a
patent ductus arteriosus
.
Heart catheterization may be done to partially or completely repair a defect.
More severe defects require
surgery.
If a newborn needs surgery, the
surgery may be delayed until the baby is stronger. If the defect threatens the
baby's life, surgery will be done right away.
Medicines may be
given in a vein for severe defects such as
coarctation of the aorta,
transposition of the great vessels, or
tetralogy of Fallot.
Medicine, heart
catheterization, or surgery may also be used as initial treatment for a mild
congenital heart defect that is not noticed until later in childhood,
adolescence, or early adulthood.
Ongoing treatment
If your child needs surgery,
your doctor may want to wait until your child is about 2 to 4 years old.
Meanwhile,
caring for your child who has a heart problem can be
hard. You may need to keep track of many medicines and make frequent trips to
the doctor. Costs can be overwhelming. And you may feel guilty, as if something
you did caused the child to have a
heart defect. The defect is not your fault. Try to
find support groups and other parents who can help you with the many emotions
involved.
Until your child can have surgery, you may need to focus
on:
Some congenital heart defects can be completely repaired
with one surgery. More complex defects often require several surgeries over the
years.
Knowing what to expect in the hospital can help you
plan ahead. For example, you can consider what kinds of items to bring and how
you will want to record instructions from the health professionals in the
hospital.
If your child is older, talking to him or her about what
to expect may be helpful.
With most congenital heart defects,
your child's heart will not be completely normal even after surgery. Medicines
and trips to the
cardiologist may be needed throughout life.
It can be difficult to accept that your child has a heart defect, and it
is normal to worry about his or her future. Make sure you
take time to adjust to these challenges.
Adults who have congenital heart defects also need regular checkups. You
also may need to be
careful when you exercise or avoid exercise
altogether.
Treatment if the condition gets worse
If your
child has a severe
congenital heart defect or develops complications,
more treatment is needed.
Medicines often are used for young
children with large defects who have
heart failure. Complex
cyanotic heart defects usually require medicines more
often than
acyanotic heart defects.
At this stage,
medicines are used to help the heart work better:
Additional
heart catheterization procedures or
surgeries are sometimes needed to further
correct-either fully or partially-the defect.
What to think about
Some people die from severe
congenital heart defects or related
complications, such as
heart failure.
If your baby is born with
a severe heart defect, be assured that there is a good chance that he or she
will survive with treatment. But you must also prepare for the possibility that
your child may die. Talk with your doctor about local resources and
organizations that can help you manage the many emotional and practical
struggles when faced with this possibility. It may help to talk with other
parents who have had children with congenital heart disease. For more
information on these resources, see the Other Places to Get Help section of
this topic.
Prevention
Congenital heart defects generally cannot be
prevented. But before and during pregnancy you can lower your risk of having a
baby with heart defects.
Women who plan to become pregnant and
women who are pregnant can lower their risk of having a baby with a congenital
heart defect by taking steps to have a
healthy pregnancy.
If you are thinking of
becoming pregnant and you or your partner has a congenital heart defect, ask
your doctor about
genetic counseling. This may help you find out if you
have an increased chance of having a child with a heart defect. A woman who has
a congenital heart defect should try to find out if becoming pregnant will
increase her risk of health problems.
If you are pregnant and
someone else in your family has or had a congenital heart defect, talk with
your doctor about tests that can tell whether your baby (fetus) has a heart
defect. Some heart defects can be found before the baby is born, and treatment
can begin early.
Home Treatment
Congenital heart defects often are repaired with
surgery or
heart catheterization, but home treatment also plays
an important role.
Coping with oxygen problems
Home treatment may
include caring for a child who has cyanosis, or problems getting enough oxygen.
Children with cyanosis may develop a bluish tint to the skin. If your child has
"blue spells":
- Attempt to calm him or her. This is the most important thing
you can do.
- Try placing the child with the knees to his or her
chest-either on the back with the knees drawn up to the chest or in a sitting
position with the chest to the knees.
- You may need to give your
child oxygen if the spells are severe and do not improve with a change in
position. Oxygen is given through a small tube at the nose. Your doctor will
determine the proper amount of oxygen needed.
- Note when the blue
spells occur and plan activities to try to decrease the spells.
- Try to prevent cyanosis by keeping the child warm, decreasing
activity, and feeding small, frequent meals.
- Notify your child's
doctor when a blue spell happens.
Getting your child to eat enough
Nutrition is very
important for children who have congenital heart defects. Getting your child to
eat right can be a challenge. Children with congenital heart defects often tire
when eating, so they eat less and may not get enough calories. Feeding may take
longer than you expect.
To help overcome feeding difficulties or
lack of weight gain:
- Learn to recognize your baby's first signs of
hunger, such as fidgeting and sucking on a fist. This will help you to initiate
feeding before your baby starts to cry. Your baby will have more energy to eat
well if he or she isn't tired from crying.
- Use a soft, special
nipple made for babies born early. These nipples make it is easier for your
baby to get enough formula or breast milk if you bottle-feed.
- Burp
your baby often, especially when using a bottle. Babies who have trouble
sucking take in large amounts of air when they eat, which makes them feel full
before they get enough formula or breast milk.
- Give smaller, more
frequent, meals. Smaller meals do not require as much energy to eat or
digest.
Giving medicines
Medicines to treat congenital
heart defects are very strong and can be dangerous if they are not given
correctly. It is important to know how to give your child's medicine
safely.
If you are not comfortable giving medicine to your child,
ask your doctor the following questions:
- If the baby spits out or throws up the
medicine, do I give another dose?
- If a dose of medicine is missed,
should I give an extra or a double dose?
- How soon after starting
the medicine should I expect my child to start getting better?
- If
the medicine is to be given 3 or 4 times a day, do I need to wake my child up
at night for a dose of the medicine?
- Should I give the medicine
with food? If my child refuses to take the medicine, is it okay to add the
medicine to food or drink to get the child to take it?
- Can other
medicines be given at the same time?
- What are the most common side
effects of the medicine?
If you need to give more than one medicine, ask your
health professional about having a home health nurse visit you. The nurse can
set up a schedule for the medicines, show you how to store them, and help you
become more comfortable giving them.
Family issues
Take care of yourself and your
family as you learn to deal with a lifelong condition. You can:
- Talk to a counselor.
It is normal to feel sad. You may grieve because your baby is not the perfectly
healthy infant you imagined. If you or a family member continues to feel
extremely sad, guilty, or depressed or is otherwise having trouble dealing with
your child's illness, talk with a health professional.
- Join a support group. It is helpful to be in contact with organizations and
people who can offer support and answer your questions as they arise.
- Allow yourself time to adjust .
It can be difficult to accept that your child has a serious illness, and it is
normal to worry about the effect the condition will have on your child's
future.
Expenses can quickly multiply if your child's heart
defect requires several hospital stays and tests. You may qualify for help from
organizations such as the Crippled Children's Services or Medicaid. Talk with
your health professional about a referral to a social worker or financial
counselor who can help you.
Adults with congenital heart defects
often have a variety of issues to consider, including:
Adults and teens with congenital heart defects may have
self-esteem issues because of how they look. They may have scars from repeated
surgeries, be smaller, have
clubbing, or have limits on how active they can
be.
Children may feel alone and have trouble coping because they
have to stay in the hospital often. It is hard for children with serious heart
defects to feel "normal."
Medications
Medicines often are needed to treat
congenital heart defects until the defect can be
repaired or corrected. Some complex
acyanotic heart defects and most
cyanotic heart defects require ongoing treatment with
medicines even after the defect is repaired. Children with certain defects that
cannot be completely corrected may have to take medicines for a long
time.
Medicines typically are used to:
- Treat
heart failure by reducing the amount of extra fluid in
the body (with diuretics), by increasing the strength of the heartbeats (with
cardiac glycosides), or by enlarging blood vessels (with vasodilators).
- Control irregular heartbeats by using
antiarrhythmics.
- Prevent
endocarditis with antibiotics.
- Improve
blood flow to the lungs or the body (with prostaglandins and prostaglandin
inhibitors).
Medication Choices
Medicines used to improve blood flow and help manage
symptoms related to heart failure include the following:
- Diuretics
- Cardiac glycosides (such as digoxin)
- Vasodilators
- Antiarrhythmics
Other medicines may include:
What To Think About
Treatment with medicines varies
depending on the:
- Type of defect. Complex cyanotic heart
defects usually need treatment with medicines more often than acyanotic heart
defects.
- Size of the defect. Children with large defects are
likely to have symptoms of heart failure and to require medicines for
it.
Medicines used to treat congenital heart defects are very
strong and can be dangerous if they are not given correctly. It is important to
know how to
give medicine to your child safely. For example, you
should be confident with knowing how much medicine your child needs and how and
when to give it.
Surgery
If your child has a large or complex
congenital heart defect, he or she may need open-heart
surgery. The kind of surgery will depend on what defect the child has. In
general the types of surgery are:
- Closing holes that have either formed or not
closed. Usually, a patch or stitches are used.
- Widening arteries or
heart valves.
- Returning the aorta or pulmonary arteries to the
right position.
- Repairing narrowed valves.
In rare cases, a heart transplant may be needed.
Be prepared for
what to expect in the hospital. It may be shocking to see your newborn or
child hooked up to so many machines and tubes. For example, your child will
likely get medicines and fluids through an
intravenous (IV) catheter. He or she may be on oxygen
or a ventilator. Your child may have drains in the chest to remove fluids after
surgery.
If your child is older, you can help your child be more
comfortable and secure by preparing him or her for what to expect, asking
questions, and letting him or her talk to the doctor too.
Surgery Choices
The type of surgery is determined by the defect and the
surgeon's preference. Surgery is done for more complex defects or when
catheterization cannot correct the defect.
What To Think About
Some congenital heart defects
can be completely repaired with one surgery. Some of the more complex heart
defects require several surgeries over several years.
Even after
surgery, your child may still have symptoms such as weakness and a bluish tint
(cyanosis) to the skin, lips, and nail beds. Your doctor may recommend
limiting exercise or sports as your child gets older.
Other Places To Get Help
Organizations
| American Academy of Pediatrics |
| 141 Northwest Point Boulevard |
| Elk Grove Village, IL 60007-1098 |
| Phone: | (847) 434-4000 |
| Fax: | (847) 434-8000 |
| E-mail: | kidsdocs@aap.org |
| Web Address: | www.aap.org |
| |
The American Academy of Pediatrics (AAP) offers a
variety of educational materials, such as links to publications about parenting
and general growth and development. Immunization information, safety and
prevention tips, AAP guidelines for various conditions, and links to other
organizations are also available. |
|
| American Heart Association (AHA) |
| 7272 Greenville Avenue |
| Dallas, TX 75231 |
| Phone: | 1-800-AHA-USA1 (1-800-242-8721) |
| Web Address: | www.americanheart.org |
| |
Call the American Heart Association (AHA) to find your
nearest local or state AHA group. AHA can provide brochures and information
about support groups and community programs, including Mended Hearts, a
nationwide organization whose members visit people with heart problems and
provide information and support. AHA's Web site also has information on
physical activity, diet, and various heart-related conditions. |
|
| March of Dimes |
| 1275 Mamaroneck Avenue |
| White Plains, NY 10605 |
| Phone: | (914) 997-4488 |
| Web Address: | www.marchofdimes.com |
| |
The March of Dimes tries to improve the health of babies by
preventing birth defects, premature birth, and early death. March of Dimes
supports research, community services, education, and advocacy to save babies'
lives. The organization's Web site has information on premature birth, birth
defects, birth defects testing, pregnancy, and prenatal care. You can sign up
to get a free newsletter and also explore Understanding Your Newborn: An
Interactive Program for New Parents. |
|
| National Heart, Lung, and Blood Institute
(NHLBI) |
|
P.O. Box 30105 |
| Bethesda, MD 20824-0105 |
| Phone: | (301) 592-8573 |
| Fax: | (240) 629-3246 |
| TDD: | (240) 629-3255 |
| E-mail: | nhlbiinfo@nhlbi.nih.gov |
| Web Address: | www.nhlbi.nih.gov |
| |
The U.S. National Heart, Lung, and Blood Institute (NHLBI)
information center offers information and publications about preventing and
treating heart, lung, and blood diseases. |
|
References
Citations
Brickner ME (2007). Congenital heart disease. In EJ
Topol, ed., Textbook of Cardiovascular Medicine, 3rd
ed., pp. 502-536. Philadelphia: Lippincott Williams and Wilkins.
Other Works Consulted
Allen HD, et al. (1998). Pediatric therapeutic
cardiac catheterization: A statement for healthcare professionals from the
Council on Cardiovascular Disease in the Young. American Heart Association.
Circulation, 97(6): 609-625.
Driscoll DD, et al. (1994). Guidelines for
evaluation and management of common congenital cardiac problems in infants,
children, and adolescents. Circulation, 90(4):
2180-2188.
Webb GD, et al. (2004). Congenital heart disease. In
DP Zipes et al., eds., Braunwald's Heart Disease, 7th
ed., pp. 1489-1552. Philadelphia: Elsevier Saunders.
Credits
| Author | Robin Parks, MS |
| Editor | Kathleen M. Ariss, MS |
| Associate Editor | Pat Truman, MATC |
| Primary Medical Reviewer | Michael J. Sexton, MD - Pediatrics |
| Specialist Medical Reviewer | Larry A. Latson, MD - Pediatric Cardiology |
| Last Updated | October 25, 2007 |