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Holoprosencephaly
Topic Contents
Holoprosencephaly Support Group
Families for HoPE, Inc.

Holoprosencephaly

Self Help Clearinghouse
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Holoprosencephaly Support Group

Online. 554 members. Founded 1999. Mutual support for parents and families of children with holoprosencephaly (HPE). HPE is a rare birth disorder caused by the failure of the forebrain of the embryo to properly divide, causing defects in the development of the face and brain structure and function.
Website: http://health.groups.yahoo.com/group/holoprosencephaly/
Verified: 9/23/2008

Families for HoPE, Inc.

Offers support and education to families of infants and children diagnosed with holoprosencephaly (HPE), a congenital brain malformation. Offers support for all stages of the HPE journey.
Write:
Families for HoPE, Inc.
1219 N. Wittfield St.
Indianapolis, IN 46229
Voice: 317-898-5556
Website: http://www.familiesforhope.com
E-mail: info@familiesforhope.com
Verified: 10/8/2008

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

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