This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
The International Morquio Support Group
International network. Founded 1999. Provides support and education
for families of children with Morquio Type A. Helps educate health
care professionals about this lysosomal storage disease. Funds
research. Maintains database of families. Referrals to physicians
and medical information, pen pals, phone support, conferences and
newsletter, online guestbook and helpful links.
Write: Morquio Support Group
PO Box 64184 Tucson, AZ 85728-4184
Voice: 520-744-2531 Fax: 520-744-2535
Website: http://www.morquio.com
E-mail: mbs85705@yahoo.com
Verified: 10/9/2008
National MPS Society
National. Founded 1974. Provides support and hope for individuals
with mucopolysaccharidoses or mucolipidoses (and their families)
through research, advocacy, public education and parent referral
service for support networking.
Write: National MPS Society
4220 NC Highway 55, Suite 140 Durham, NC 27713
Voice: 919-806-0101
Website: http://www.mpssociety.org
E-mail: info@mpssociety.org
Verified: 10/8/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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