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Nemaline Myopathy Support Group
International network. Founded 1999. Grassroots group that networks
families affected by pediatric/adult Nemaline Myopathy for support
and information. Pen pals, literature, phone support, information
and referrals available through several Yahoo e-groups targeting age
groups and English, Spanish and German speaking families. NM
Conventions organized to meet researchers and other families.
Write: Nemaline Myopathy Support Group
c/o 5 Cairnbank Gardens, Penicuik Midothian, EH26 9EA, UK
Website: http://www.nemaline.org
E-mail: davidmcd_@hotmail.com
Verified: 9/22/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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