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Tyrosinemia

Tyrosinemia

Self Help Clearinghouse
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Groupe Aide Aux Enfants Tyrosinemiques du Quebec

Model. One group in Quebec. Founded 1989. (Bilingual)
Provides support and information for parents of children with tyrosinemia type I (aka alpha foetoprotein or hepatorenal type hereditary tyrosinemia). Pamphlets and diet book available in French; literature available in French and English. Networks on computer, and face-to-face meetings.
WRITE:
Groupe Aide Aux Enfants Tyrosinemiques du Quebec
c/o Gerard Tremblay
3162, rue Granville
Jonquiere, Quebec
G7S 2B9 Canada
CALL: 418-548-1580
E-MAIL: gerard.tremblay@sympatico.ca
WEBSITE: http://www.cegep-chicoutimi.qc.ca/gaetq
VERIFIED: 10/11/2004


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