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X-Linked Hyophosphatemia (Vitimin D Res Rickets)
Topic Contents
XLH Network

X-Linked Hyophosphatemia (Vitimin D Res Rickets)

Self Help Clearinghouse
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

XLH Network

Online. Founded 1996. Volunteer organization offering support and information for individuals and families affected by X-linked hypophosphatemia (aka X-linked hypophosphatemic rickets, familial hypophosphatemic rickets or vitamin D resistant rickets). Also open to those affected by similar disorders including autosomal dominant hypophosphatemic rickets and tumor-induced osteomalacia. Open to interested professionals dedicated to understanding in terms of support, research and developing new treatments. Exchanges and disseminates information. Offers an online brochure and members listserv.
Write:
XLH Network
4562 Stoneledge Lane
c/o Joan Reed
Manlius, NY 13104
Website: http://www.xlhnetwork.org
E-mail: joan.reed@xlhnetwork.org
Verified: 9/30/2008

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

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